enough is ENOUGH.

Make no mistake about it,

despite the "realities" I'm bombarded with on a daily basis,

I know my son is leaving this hospital a vision of health,

but in the interim his condition is absolute

torture to observe.

.

I'm just desperate to offer him some sort of relief.

That's my singular JOB as a mother, right?

.

To protect and comfort my child.

.

But I couldn't protect him and now I can't comfort him

and that's an absolutely miserable way to feel.

.

He's currently so completely swollen that

they call him the Michelin Baby. . .

.

I have to say that I think the nickname

is the understatement of the century.

.

His skin is just so taut that it looks like it could literally

tear open at any given moment.

.

His eyes look like he has those ginormous marshmellows

tucked up under their lids.

.

It's so bad that I'm not posting a picture
because I'm afraid it is just too disturbing.

.

He bears NO semblance to his former self.

.

Sometimes I cry because I'm afraid
I'm forgetting what he looks like.

.

He's in a lot of danger if his vascular system

doesn't get it's act together and kick it

into high gear pretty soon here.

.

He's just so deathly ill that he's got these leaky veins

and because of that

fluid is leaking into his tissues making him swell.

.

Normally they administer a drug called Lasix,

which is a diuretic designed to increase the body's excretion of urine.

Unfortunately this drug is causing

Gavin's blood pressure to dip dangerously low.

.

soooo. . .

we just need to invest our prayers and faith

into his body figuring this out on its own.

.

So again, let's all

PRAY FOR PEE!!!

.

aaaaand of course healthy heart functioning.

.

So far his heart has been hanging in there,

but in yesterday's echocardiogram we

saw a little distress. . .

.

hoping that AWESOME plasma exchange will help with that!

.

Alllllllll that said:

God is with us!

We are being carried through with courage,

confidence and strength.

.

God is good!

.

Thank you. A trillion times over.

Aaaand one more time,

just for good measure:

THANK YOU!

.

**While I've gotcha here,

please say a little prayer for 7 month old baby Blake

who was inadvertently given a perscription of VALIUM

by the pharmacy instead of his cold med!**

.

**And one more for 10 year old Ashly

who was hit by a car yesterday morning

(right in front of her sweet mother)

on her way to school**

.

Seems like everyone around us needs a prayer and a miracle.

Happily there's definitely a surplus of both!

.

A million loves!

.

Nat